Seizures…

Haylie sofaToday, I sit here at my computer as rain soaks the whole grey world outside, watching Facebook for likes to my most recent blog post and watching the numbers on my WordPress stats rise.  Wow, I’ve just been read in Ireland.  And Romania.  Technology is amazing.  I have time for social media stalking on this soggy morning because the young woman who I usually study geometry with at this time of day, my daughter Haylie, is sound asleep on the couch with our beloved four-legged furry on guard next to her.

She is sleeping off a seizure hangover. Continue reading

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Pausing to reflect…

As that ambulance raced away into the night with my tiny, sick, unconscious daughter in it, the daughter that had still been inside me just twelve days before, I was as present as I have ever been in my entire life.  I felt the emptiness of my warm hands that had passed my baby on to complete and utter strangers in the dark of a humid August night.  I felt the concrete firmness of Continue reading

As the Day Went By (a book excerpt)…

As the day went by, Haylie was obviously more and more distressed.  She was whimpering and, as evening came on, she began to shiver.  Little shivers that grew more intense.  This was totally disconcerting, especially because there was nothing I could do but to report it to the nurse, who was not as concerned about it as I was.  The incubator was temperature controlled and she assured me that everything was ok.  Then why is my baby shivering?  Continue reading

On with the tale I must tell…

Haylie was born just after midnight on Saturday, July 24th. We went home the very next day around dinner time. I wanted to spend as little time as possible in that hospital. Along with my newborn, I left with a prescription for a course of antibiotics as well. The long difficult labor had resulted in a urinary tract infection that was found when they checked my cautiously delivered urine sample that morning. Continue reading

Letting go of labels…

Since publishing my blog with the story about my daughter Haylie overcoming her brain injury, I have been approached by readers for all sorts of reasons – people looking for more information, people seeking hope and inspiration for their effective work with their own hurt kids, people congratulating us, people wondering how on earth that could really be possible, and people who Continue reading